6 yrs old- CDKL5 disorder
Miriam was born with CDKL5 Deficiency Disorder, a rare genetic condition that causes difficult-to-control seizures and significant developmental delays.
Even with all of these challenges, Mirzy (as we call her) radiates joy. She lights up at music, lights, laughter, and—most of all—when she’s surrounded by people who love her. That’s why this “Happy” would mean so much to her. It’s not just a gift, it’s a reminder that her story matters, her smile matters, and that despite the hardships, happiness is possible and worth celebrating.
She may not have words to tell you herself, but her eyes and her laughter tell the story every day: happiness is found in the little moments, and she would absolutely love and cherish this “Happy.”
Even with all of these challenges, Mirzy (as we call her) radiates joy. She lights up at music, lights, laughter, and—most of all—when she’s surrounded by people who love her. That’s why this “Happy” would mean so much to her. It’s not just a gift, it’s a reminder that her story matters, her smile matters, and that despite the hardships, happiness is possible and worth celebrating.
She may not have words to tell you herself, but her eyes and her laughter tell the story every day: happiness is found in the little moments, and she would absolutely love and cherish this “Happy.”
Posted in Happies
Recent
Everleigh- 7 years old living with Alopecia
April 27th, 2026
6 yrs old- CDKL5 disorder
April 26th, 2026
15 yrs old - Cleft Feet, Apraxia of speech & Intellectual Disability
March 1st, 2026
"Happy" in Progress- 6 yrs old Fanconi Anemia
March 1st, 2026
"Happy" in Progress- 9 yrs old -Leigh Syndrome
March 1st, 2026
Archive
2026
2025
2024

No Comments